Wednesday, September 17, 2014

Minor set back

So while we were having the time of our lives at this year's block party, I got tired and dehydrated from some diarrhea that has been plaguing me for weeks.  That night after missing out on alot of the afternoon festivities due to needing to lay down, my blood pressure dropped dangerously low and we ended up once again at the ER.  Turns out I have C. diff, a bacterial infection of the gut that causes diarrhea and dehydration.  I was hospitalized for 2 days and sent home on an antibiotic to treat the infection.  But its not without a fair share of inconveniences, even after the diarrhea stops, I still have massive bloating and fevers.  But they are getting better.  I had great care as always at the UIHC, thanks everyone there.

Wednesday, August 27, 2014

33 and thriving!

The last three weeks have been great.  I don't have alot to say, but thank you for all your wonderful prayers, I know God hears them and answers them in His time.  A huge thank you goes out to all the wonderful women of my quilting group who each assembled an individual block of a quilt which was sewn together into a beautiful friendship quilt.  I won't mention any names on here, but you know who you are.  I absolutely love it, and it is so soft and it is my main go to quilt now when I'm napping.

Our son moved up to preschool this fall school year!  He likes his teachers and loves all the new toys and new class mates.  We are working on staying dry through the night, and working on controlling ours (and his) frustrations when things are challenging.

I love being a "housewife", doing cleaning, cooking, and laundry meanwhile squeezing in quilting, card making and knitting.  It keeps me busy.  My latest project is a "memory" quilt for Parker.  It is assembled from clothes he has outgrown, fabrics of favorite activities, sayings and other important or loved fabrics.  Its going to be a wonderful gift which he will cherish forever.

Sunday, July 27, 2014

Huge steps in the right direction

Thanks to all your prayers and continued support I have made leaps and bounds forward in my recovery from radiation.  I even managed a mile hike at Kent Park this weekend, followed by fishing at eating out 2 times without getting an upset tummy.  So I think we are beyond the worst and are moving to new territory.  My tumor marker did go up some what but its still not as high as it once was and we still have therapies to turn to.  I also managed to go to church this weekend which was filled with hugs and support, exactly what I needed and was so looking forward to seeing.   I can't wait until next weekend.  Parker is doing great and is getting ready to start preK next month.  And on top of all these wonderful gifts our friends decided to treat us to a bed and breakfast in Galena, IL for just the two of us, we will be going in 2 weeks and I can't wait.   Grandma and Grandpa will be more than happy to watch Parker so we can get away for some R and R.   Thanks for all your continued prayers, they make a world of difference, so thank you and God Bless!   I'm working hard at my own version of PT, walking mostly, but am eager to try swimming soon too! XOXOXOX

Friday, July 25, 2014

More baby steps

So unfortunately, the radiation has left me pretty weak and I am trying hard to regain my strength.  Please pray for my continued strength and faith that God can heal all our pains.

Tuesday, July 8, 2014

Baby steps

I've changed my mind about moving to a caring bridge website as it is too much trouble.  So I will continue to keep you updated here.  Pain is gone, 2 more doses of radiation left,  nausea really a pain in the butt right now.  Please prayer angels, pray for me to recover from nausea and rejoin the party that is my own life.  Today at chemo, I was too dehydrated to get chemo, so I just got fluids. 

Wednesday, June 25, 2014

Prayer warriors help, I am struggling with pain spreading throughout my skeleton!  I've been in the hospital since Sunday to manage my painful bone mets.  My docs say I I may only have months to live, but no one can predict.  It depend on how I respond to my therapy.

We don't need any meals, right now, but if you are willing to help in person (or in spirit), I might take you up on it.   First off we need prayers.  Pray that the medicine keeps the cancer at bay or sends it running for the hills.
I am getting help from hospice, and they will aid at home.  I will have nurses and aids come to help with adjusting my meds, therapy for post radiation, and driving me to some appointments.
If you want to help, contact Patrick or I privately and suggest a way you can help,  here are some suggestions.  Please ask before you do something so we don't end up throwing out food we don't have room for.

1. Offer to babysit
2. Offer to mow the lawn
3. Take Kristin grocery shopping,
5. drive Kristin to appointments or help her at work to clean out her desk
6. Stop by for coffee, you now know I can't drive, but I have a coffee pot, and a keurig

My uiowa email has been terminated, my home Emil is ness.kristin@gmail.com
Thanks,
Kristin






















Wednesday, June 11, 2014

New therapy MUST be working

Good news, the new therapy must be working because for the past 2 weeks, I've had the most horrible "tumor flare" ever.  My left femur hurts so bad I can barely climb stairs.  I'm mostly at home as I am in no shape to work, I am in chronic pain and on high level of pain relievers.  The doctor said that the thought is that the more pain you are in during the flare, the better response you will have from the treatment.  That doesn't indicate how long the therapy will work for, so we still have much to pray for, but we at least have a game plan for now. 
To clear up confusion from my earlier post, its not that I don't want to talk about my cancer, its that I like to talk about other things too, like normal things.  If you are concerned and want to talk to me about my situation, please talk directly to me, I am open to talking about my cancer.  But please remember to respect my wishes when it comes to treatment choices.