I probably should have labelled my blog, as I don't want to die soon. Because sooner or later we all have to face the facts that we will die, and we have little control over when or how it happens. As a friend told me, some of us just graduate earlier that others.
As for me, I am sadly headed down hill and am in need of some prayers again. The cancer in my liver has made my liver hard as a rock and very uncomfortable to bend over or lean forward. I am on oxygen at night and when I exert myself. I'm slowly loosing control over my life and am having to lean on loved ones for help. If you have volunteered and I have yet to call on you, be patient, there will be plenty of help needed and I have no doubt that you love us.
My tumor maker is up yet again and I have chosen to switch doctors to get another opinion, she's much more positive that my previous doctor and I hope she has some more tricks up her sleeve. But in all honesty, there is little left for the doctors to do, it is now up to God. Thanks for all your prayers, I'm sorry I can't answer every card, but know they are greatly appreciated.
Monday, October 20, 2014
Sorry I've been MIA on facebook and church events. I was admitted to the hospital on Friday night for a fever of 104, then they were concerned about my cardiac perfusion growing and possibly my liver hematoma growing. Turns out everything is stable for now but my liver hematoma is large and extremely painful- I'm hoping that means that the cancer there is dying and causing alot of inflammation and thereby causing the fevers. Hared to know. Thanks for all your calls and concerns. Right now my biggest need will be getting rides during the day to appointments while I'm on certain drugs I can't drive I have this week covered already thanks to family.
Thursday, October 2, 2014
Greetings friends and prayer warriors. I have bad news and I want to get it out before you hear it second-hand. The cancer has progressed into my liver and the doctors believe that if it doesn't respond to the new therapy we could be looking at months. So....... that leaves me planning for the future, leaving Parker with lots of birthday cards, graduation cards, letters, videos, songs and so forth. I am not scared, I have come to terms with my disease. But whatever prayers you can muster, would be greatly appreciated. We want to pray especially for Parker and Patrick. And obviously we pray that we get more time than just a few months. Feel free to call me at anytime to chat, I want to reach out to all those who have reached out to me and give them a big hug. I still have time for lunches, coffee breaks and ice cream runs. Plus I'm frequently at the hospital, so if you work there, we can always find time to meet up. I am getting radiation to my knee for some met pain. But other than that which will soon subside I am pain free and loving life. So help me celebrate!
Wednesday, September 17, 2014
So while we were having the time of our lives at this year's block party, I got tired and dehydrated from some diarrhea that has been plaguing me for weeks. That night after missing out on alot of the afternoon festivities due to needing to lay down, my blood pressure dropped dangerously low and we ended up once again at the ER. Turns out I have C. diff, a bacterial infection of the gut that causes diarrhea and dehydration. I was hospitalized for 2 days and sent home on an antibiotic to treat the infection. But its not without a fair share of inconveniences, even after the diarrhea stops, I still have massive bloating and fevers. But they are getting better. I had great care as always at the UIHC, thanks everyone there.
Wednesday, August 27, 2014
Our son moved up to preschool this fall school year! He likes his teachers and loves all the new toys and new class mates. We are working on staying dry through the night, and working on controlling ours (and his) frustrations when things are challenging.
I love being a "housewife", doing cleaning, cooking, and laundry meanwhile squeezing in quilting, card making and knitting. It keeps me busy. My latest project is a "memory" quilt for Parker. It is assembled from clothes he has outgrown, fabrics of favorite activities, sayings and other important or loved fabrics. Its going to be a wonderful gift which he will cherish forever.
Sunday, July 27, 2014
Thanks to all your prayers and continued support I have made leaps and bounds forward in my recovery from radiation. I even managed a mile hike at Kent Park this weekend, followed by fishing at eating out 2 times without getting an upset tummy. So I think we are beyond the worst and are moving to new territory. My tumor marker did go up some what but its still not as high as it once was and we still have therapies to turn to. I also managed to go to church this weekend which was filled with hugs and support, exactly what I needed and was so looking forward to seeing. I can't wait until next weekend. Parker is doing great and is getting ready to start preK next month. And on top of all these wonderful gifts our friends decided to treat us to a bed and breakfast in Galena, IL for just the two of us, we will be going in 2 weeks and I can't wait. Grandma and Grandpa will be more than happy to watch Parker so we can get away for some R and R. Thanks for all your continued prayers, they make a world of difference, so thank you and God Bless! I'm working hard at my own version of PT, walking mostly, but am eager to try swimming soon too! XOXOXOX