I won't sugar coat things this time, my emotions are raw and terrifying. The radiation oncologist actually said when I asked her how does my MRI look, she said "not good", and then "well you know this disease isn't beatable". Ouch, that hurt so much, because I want to believe it is, and that every disease is beatable- if it can be lived with. Diabetes isn't beatable but people live normal lives if they keep it under control. So despite the victory of my foot pain going away, being done with radiation, I'm on pins and needles waiting to start the next one. I hate being on nothing, it makes my mind spin thinking of all the things and ways the cancer is misbehaving in my bones.
My mind is coming up with more symptoms, more aches and pains as I wean myself off of the narcotics previously camouflaging cancer pain and treating the nerve pain from my foot. I can only imagine what I will really feel like when I'm not taking any pain meds. I'd always used pain as a measure of how I was doing, and I never liked being dependent on pain meds for daily activities. If I can't function now without narcotics, I will really be upset with myself. Hopefully some ibuprofen will do the trick if there is still some pain going around.
Now next time I post, I will hopefully be in a better place and say something like 1) No one has ever had my type of cancer before, 2) No one has ever been treated with the drugs I have been and will be treated with..... therefore why assume I will follow in anyone elses' footsteps. I wish I could feel that way right now.
Kristin, when I went through radiation I had a tough few days and thought about quitting! I called my radiation doc and told her as much. Her words, (and I quote), "a lot of my terminal cases don't complete treatment so if you want to stop, that's fine." Terminal? It was the first time someone had said that to me. Don't get me wrong, with stage iv cancer I knew I was not "curable" but the word "terminal" sent me into a tailspin. I cried for days! And every time I looked at my little girl I wondered what her life would be like without her mama. My onc (god love him) told me to forget what anyone said and forge ahead with treatment. I did, thankfully! Please don't let anyone else's words or ideas stop you from moving forward and treating this like a manageable disease. We both know that everyone is "terminal!" No one makes it out of here alive. But hopefully we've got years still, living, loving and watching our children grow -albeit with a few little "issues" and treatments thrown in. Ha! Understatement, right?! (: Sending love from CO!
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