In my last entry I was trying to decide if I could read my body and "know" if my current therapy was working based off how I felt, when pains came and went. My doctor had already shot down my hope that the 30% increase in tumor markers from the previous month was probably not a tumor flare, and it was likely progression in the bones- but we had to give it one more month to know for sure. I didn't agree with him, I had this gut feeling that this therapy was working as my bone pain was significant early on, and then suddenly went away.
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My sister and I trying on bridesmaid dresses |
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Well it turns out, I do know my body! My tumor markers fell 1 point this month, suggesting stable disease for now. I didn't actually meet with my doctor to say "I told you so", because of the snow storm and my lil' man came down with pneumonia and I might have had influenza- so it worked out perfect that we discussed my numbers over the phone and he agreed that we need to stay on this therapy, and keep TDM1/Kadcyla in our back pocket.
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Guess who loves trains |
I was thrilled! As much as I want to be on the best drug out there, I know that I need to stick with each therapy as long as possible to ensure I get all the benefit, and don't run out of options too soon. My insurance even sent a letter saying I was approved for the 100K/year drug, phew! So live is great!
I've started Parker in a daycare/preschool program 2 days a week, and I'm using part of this time to swim laps (low impact, not weight bearing) to help with my joint and bone health. I still have joint pain in the days following my injections, but the swimming helps.
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Parker in his snow fort |
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Thanks to all my friends and family for all your prayers- I know God hears them and is answering them in due time.
Kristin-
ReplyDeleteYou are inspiring. Reading your blogs made me realize some of the smaller everyday things I was taking for granted..so thank you! Take care and stay strong!
-K Clements
Hi Krissy,
ReplyDeleteI am glad to hear things are holding out for now. Hoping and praying the signs of healing will progress into the positive direction with this new therapy.
I am sorry to hear you and Parker got sick. I think my nephews Cameron and Zach just got over a bad case of the flu. So icky the things that go around nowadays. Here is hoping for a speedy recovery from those bugs.
I am sad that I am not going to see you this coming week in the warm sun, but I understand. I am hoping that in the weeks coming Kim and I will be able to schedule a time to come visit? We definitely want to come the weekend of Parker's birthday! Warm wishes and much love!
~Stephen
Glad you are doing well (and you look FANTASTIC with your sister)! Thank you for keeping an old lab-neighbor in the loop. I love Parker's snow fort and it is inspiring new ideas in snow technology!!!
ReplyDeleteYay! That's great news! God willing we will have a cure soon!
ReplyDeleteYou are such a beautiful soul and inspire me daily! I'm praying that God lift you, your lil' man and Patrick up in His hands.
ReplyDelete-Kim