Thursday, March 14, 2013

No changes this month


In my last entry I was trying to decide if I could read my body and "know" if my current therapy was working based off how I felt, when pains came and went.  My doctor had already shot down my hope that the 30% increase in tumor markers from the previous month was probably not a tumor flare, and it was likely progression in the bones- but we had to give it one more month to know for sure.  I didn't agree with him, I had this gut feeling that this therapy was working as my bone pain was significant early on, and then suddenly went away.  

My sister and I trying on bridesmaid dresses

Well it turns out, I do know my body!  My tumor markers fell 1 point this month, suggesting stable disease for now.  I didn't actually meet with my doctor to say "I told you so", because of the snow storm and my lil' man came down with pneumonia and I might have had influenza- so it worked out perfect that we discussed my numbers over the phone and he agreed that we need to stay on this therapy, and keep TDM1/Kadcyla in our back pocket. 

Guess who loves trains

I was thrilled!  As much as I want to be on the best drug out there, I know that I need to stick with each therapy as long as possible to ensure I get all the benefit, and don't run out of options too soon.  My insurance even sent a letter saying I was approved for the 100K/year drug, phew!  So live is great! 


I've started Parker in a daycare/preschool program 2 days a week, and I'm using part of this time to  swim laps (low impact, not weight bearing) to help with my joint and bone health.  I still have joint pain in the days following my injections, but the swimming helps. 

Parker in his snow fort

Thanks to all my friends and family for all your prayers- I know God hears them and is answering them in due time. 

5 comments:

  1. Kristin-
    You are inspiring. Reading your blogs made me realize some of the smaller everyday things I was taking for granted..so thank you! Take care and stay strong!
    -K Clements

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  2. Hi Krissy,

    I am glad to hear things are holding out for now. Hoping and praying the signs of healing will progress into the positive direction with this new therapy.

    I am sorry to hear you and Parker got sick. I think my nephews Cameron and Zach just got over a bad case of the flu. So icky the things that go around nowadays. Here is hoping for a speedy recovery from those bugs.

    I am sad that I am not going to see you this coming week in the warm sun, but I understand. I am hoping that in the weeks coming Kim and I will be able to schedule a time to come visit? We definitely want to come the weekend of Parker's birthday! Warm wishes and much love!

    ~Stephen

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  3. Glad you are doing well (and you look FANTASTIC with your sister)! Thank you for keeping an old lab-neighbor in the loop. I love Parker's snow fort and it is inspiring new ideas in snow technology!!!

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  4. Yay! That's great news! God willing we will have a cure soon!

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  5. You are such a beautiful soul and inspire me daily! I'm praying that God lift you, your lil' man and Patrick up in His hands.

    -Kim

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