In my last entry I was trying to decide if I could read my body and "know" if my current therapy was working based off how I felt, when pains came and went. My doctor had already shot down my hope that the 30% increase in tumor markers from the previous month was probably not a tumor flare, and it was likely progression in the bones- but we had to give it one more month to know for sure. I didn't agree with him, I had this gut feeling that this therapy was working as my bone pain was significant early on, and then suddenly went away.
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| My sister and I trying on bridesmaid dresses |
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Well it turns out, I do know my body! My tumor markers fell 1 point this month, suggesting stable disease for now. I didn't actually meet with my doctor to say "I told you so", because of the snow storm and my lil' man came down with pneumonia and I might have had influenza- so it worked out perfect that we discussed my numbers over the phone and he agreed that we need to stay on this therapy, and keep TDM1/Kadcyla in our back pocket.
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| Guess who loves trains |
I was thrilled! As much as I want to be on the best drug out there, I know that I need to stick with each therapy as long as possible to ensure I get all the benefit, and don't run out of options too soon. My insurance even sent a letter saying I was approved for the 100K/year drug, phew! So live is great!
I've started Parker in a daycare/preschool program 2 days a week, and I'm using part of this time to swim laps (low impact, not weight bearing) to help with my joint and bone health. I still have joint pain in the days following my injections, but the swimming helps.
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| Parker in his snow fort |
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Thanks to all my friends and family for all your prayers- I know God hears them and is answering them in due time.
