We talked about my anxiety over my tumor marker "scores", and he really wants me to divorce myself from it and judge my disease on how I feel. He was very impressed that I have no pain and am jogging and biking again. So he sees me as a victory already. The only other woman I met with stage IV bone only metastases had significant pain which affected her quality of life. We decided that as long as I continue to have no symptoms, we will move my appointments to every 6 weeks instead of every 3. I will still go in for Herceptin every 3 weeks and continue to take the oral anti-hormonal and another oral therapy (Tykerb), but no blood tests to worry about and keep me up at night for SIX WEEKS. It makes so much sense to me- I'd rather not know every little move the cancer makes, especially if he's not going to change therapy unless the cancer makes a big move. He wants to keep TDM-1 and pertuzumab in our back pocket for things to try when our options become more limited.In other news- Parker is just getting over croup and my sister welcomed a beautiful baby girl into the world. I'm so thankful for all the prayers and well wishes and I feel so fortunate to have you all along on my journey. I'm relieved to not have to face cancer alone.
That is all so good to hear, you are a wonderful success and I fervently believe that has something to do with your amazing attitude. If you want to get your mind off things by hearing a crazed girl chatter on about wedding crap we should meet up for lunch of dinner. I haven't seen you in forever! Hugs!
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Wonderful! Love the Parker pictures too - he's getting bigger! Stop by and see us in the labs soon :)
ReplyDeleteWhat a journey you have done, congratulation for your success otherwise it's hard to deal with Stage 4 Cancer.
ReplyDeleteCongratulations on your new niece! I got a new niece and nephew in April (one from my sister and the other from my brother's wife)Even though our baby making days are done, it's so nice to cuddle a new little one and enjoy every moment with our own.
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